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Resources about ethical, legal, and social issues (ELSI) related to genetics and genomics in clinical practice
Accessing and using genetic information clinically can raise unique ethical, legal, and social concerns, generally known as ELSI. For example, unlike most other types of medical information, identifying a genetic variant in a patient may also diagnose his or her close relatives with the condition without them ever agreeing to testing. Recognizing what these issues may be in a specific situation provides the opportunity to discuss them directly with patients and identify ways to address them. The resources below discuss ELSI issues, their clinical implications, and ways to discuss them with patients.
GINA Resource. The Genetic Information and Nondiscrimination Act (GINA) protects individuals from the misuse of genetic information in health insurance and employment. This overview provides information about the law, case studies illustrating its implications for patients, and resources for talking with patients.
Core Competencies in Genetics for all Health Professionals. Genomic competencies for all healthcare professionals. Individuals and organizations may adopt these competencies as they integrate genomics content into ongoing education and program development. These competencies include discussion of ELSI implications.
The following courses contain case studies and/or information that discuss ELSI implications in clinical practice.
Genetic testing for breast cancer risk. Self-directed, 15-minute online program about evaluating how well a particular genetic test assesses breast cancer risk (clinical validity) and the potential impact of testing on patient outcomes (clinical utility). (free CME available)
Pre-test decisions & counseling. Self-directed, 15-minute online program about deciding when and if genetic testing is appropriate, given the clinical and personal context. (free CME available)
Interpreting genetic testing results. Self-directed, 15-minute online program about interpreting genetic testing results within a patient’s specific context. (free CME available)
Advance your research in genetics by harnessing the power of the mouse! This new graduate-level advanced genetics course will provide a...
This workshop provides training in the use of genetically defined laboratory mice as tools for asking questions about gene function and the...
The Jackson Laboratory and the Faculté de Médecine Pierre et Marie Curie are pleased to offer a mouse surgical workshop in Paris, France. ...
This four-day intensive hands-on workshop is for those wishing to obtain advanced training in surgical techniques for the laboratory mouse....
Join this webinar to learn about cutting edge preclinical mouse platforms used to evaluate immuno-modulatory therapies for...
This intensive workshop is for those wishing to obtain practical hands-on training in mouse surgical techniques. In addition to surgical...
Patient-derived xenograft (PDX) cancer models show great promise as preclinical models because they recapitulate the heterogeneity of human...
The prestigious 2017 ELSI Congress was hosted by UConn Health and The Jackson Laboratory for Genomic Medicine June 5-7 in...
These clinical resources provide health care professionals with education about family history collection and risk...
The goal of genomic tumor testing is to identify genomic changes in the cancer cells that are driving cancer growth for the...
Genetic testing resources for health care professionals.
Core principles that should constitute basic instruction in genetics for those in health care.
GINA protects individuals from the misuse of genetic information in health insurance and employment. These case studies provide context for...
GINA protects individuals from the misuse of genetic information in health insurance and employment. This overview provides information...
Along with its many benefits, genomic-based personalized medicine comes with legal and ethical considerations, including genetic...