Resources about ethical, legal, and social issues (ELSI) related to genetics and genomics in clinical practice
Accessing and using genetic information clinically can raise unique ethical, legal, and social concerns, generally known as ELSI. For example, unlike most other types of medical information, identifying a genetic variant in a patient may also diagnose his or her close relatives with the condition without them ever agreeing to testing. Recognizing what these issues may be in a specific situation provides the opportunity to discuss them directly with patients and identify ways to address them. The resources below discuss ELSI issues, their clinical implications, and ways to discuss them with patients.
GINA Discussion Guide. Provides talking points and key information about genetic discrimination and the Genetic Information Nondiscrimination Act (GINA), which protects individuals from the misuse of genetic information in health insurance and employment.
Communicating with Family Factsheet. Provides tips for the provider to assist in family communication about genetic testing and risk.
Informed Consent Checklist. Outlines key points to include in pretest counseling that help prepare an individual for the potential outcomes of genetic testing.
Core Competencies for Healthcare Providers. Identifies competencies in genetics for all healthcare providers, developed by the National Coalition for Health Professional Education in Genetics (NCHPEG).
Free, self-directed programs for continuing education credit. Courses contain case studies and/or information that discuss ELSI implications in clinical practice.
What is a mouse model? Find out in this Minute to Understanding from the Jackson Laboratory!
Dan Durkin, technical team lead on the Clinical Knowledgebase (CKB), gives a first hand explanation of this powerful tool (available to...
What are telomeres and what are their purpose in our bodies? In this Minute to Understanding, we give you all the basic information about...
Jens Rueter, M.D. has been appointed the first ever chief medical officer of The Jackson Laboratory. Rueter is a practicing...
Gliomas, malignant brain tumors, are considered incurable by current science. What, then, makes them so adaptable and...
What exactly are our genes? Watch this Minute to Understanding from the Jackson Laboratory to find out!
What is gene therapy and how can it vastly improve human health? Find out in this Minute to Understanding!
NCI Pediatric PIVOT program, run by JAX, aims to expedite approval of treatments for childhood cancers.
Family history resources for healthcare providers.
GINA protects individuals from the misuse of genetic information in health insurance and employment. These case studies provide context for...
Core principles that should constitute basic instruction in genetics for those in health care.
Resources for clinical educators teaching genetics.
GINA protects individuals from the misuse of genetic information in health insurance and employment. This overview provides information...
Genetic testing resources for healthcare providers.
First global online catalog of Patient-Derived Xenograft models helps cancer researchers save valuable time.
The health and genetic quality of research mice significantly impact the quality of research data. Join this webinar to...
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