The Rare Disease Odyssey, an e-book from The Jackson Laboratory, chronicles the various steps of the rare disease odyssey, a phrase coined by families affected by rare diseases and the medical professionals who work with them. Hear from families and Senior Director of the JAX Rare and Orphan Disease Center, Cat Lutz, Ph.D., to learn about this process and how The Jackson Laboratory is a part of the odyssey with many families in the rare disease community.
Whether you are on this journey for the first time, in the midst of it, or have gone through it in the past, we hope that this e-book will serve as a tool to connect you with the rare disease community and provide you with information about the important role that research plays in fighting rare diseases.
This e-book is filled with beautiful imagery and provides great resources for the rare disease community. Download your copy by filling out the form below and signing up for our rare disease newsletter. Best experienced on a desktop or tablet device.