Patient Education Materials

Family History

Have You or a Family Member Had Colorectal Cancer?, by the Centers for Disease Control. An overview of the importance of family history collection for colorectal cancer risk assessment and Lynch syndrome. Spanish-language version available.

Knowing is Not Enough—Act on Your Family Health History, by the Centers for Disease Control. Education and resources about family health history. Spanish-language version available.

Does It Run in the Family? Toolkits, by Genetic Alliance. Two customizable booklets about family history and genetics and health for a patient or community: 1) A Guide to Family Health History and 2) A Guide to Genetics and Health. Available in English, Spanish, and Tagalog.

Family Health History Toolkit, by the Utah Department of Public Health. A booklet explaining why it is important to know family health history, and tips on how to gather this information. Includes a list of ten helpful questions to ask relatives. Spanish-language version available.

Cancer Risk Factors

Six Ways to Lower Your Risk for Colon Cancer, by the American Cancer Society. A list of ways to reduce the risks you can change, and the familial risk factors that you cannot change.

What Are the Risk Factors for Colon Cancer?, by the Centers for Disease Control. A resource that lists medical, familial and lifestyle risk factors for colorectal cancer. Spanish-language version available.

Colorectal Cancer Factsheet, by the Prevent Cancer Foundation. A short but comprehensive resource that outlines information about colorectal cancer, risk facts and how to reduce risk, screening, symptoms, and treatment. Spanish-language version available.

Genetic Counseling & Genetic Testing

Genetic Counselors: Personalized Care for Your Genetic Health, by the National Society of Genetic Counselors. Describes the training and skills of genetic counselors, and includes information on what to expect during an appointment and how to locate a genetic counselor.

The Genetics of Cancer, by the National Cancer Institute. An overview of cancer genetics and genetic testing, designed for the general public and patients.

Genes in Life, by Genetic Alliance. A website where patients can learn about how genetics impacts their lives and their families.

Genetic Counselors for Hereditary Colon Cancer Syndromes, by the Hereditary Colon Cancer Foundation. Describes the genetic counselor role on the care team, including how a genetic counselor can help individuals make personalized decisions regarding genetics and their health.

Colorectal Cancer Screening

Screen for Life, by the Centers for Disease Control and National Colorectal Cancer Roundtable. A web-based quiz to test knowledge on who should be screened, how often, types of screening, insurance coverage, and symptoms of CRC. Spanish-language version available.

Colorectal Cancer Screening Brochure, by the Centers for Disease Control (English). A guide to CRC screening, including how to identify low-cost or free screening programs. Spanish-language version available.

CRC Early Detection, Diagnosis, and Staging, by the American Cancer Society (English). Provides information about screening, early detection, staging, and questions to ask the provider. Spanish-language version available.

ACS Recommendations for Colorectal Cancer Early Detection, by the American Cancer Society. A resource that outlines screening recommendations based on details of an individual’s personal and family history. Spanish-language version available. 

Hereditary Colon Cancer Support and Advocacy Groups

Hereditary Colon Cancer Foundation. A nonprofit organization serving patients with hereditary colon cancer and healthcare providers with provision of educational, social, and financial resources, including booklets about Lynch syndrome and familial adenomatous polyposis syndrome for patients.

AliveAndKickn. A patient organization that aims to improve the lives of individuals and families affected by Lynch syndrome and associated cancers through research, education, and screening.

Lynch Syndrome International. A patient organization that aims to provide support for individuals with Lynch syndrome, raise awareness of the condition, educate the public and healthcare providers, and provide support for Lynch syndrome research.

Stupid Cancer. A patient organization that seeks to empower, support, and improve health outcomes for the young adult cancer community.