Patient and Family Resources

Resources for the Genetic Evaluation Process

Genetic Counseling

What to Expect When Meeting with a Genetic Counselor. An article on Cancer.net, an information source provided by the American Society of Clinical Oncology

Testing Decision-making

Genetic Testing. An article listing factors to consider when making a decision about genetic testing. Provided by the American Society of Clinical Oncology.

Testing Decision Aid. A tool to help patients weigh the pros and cons of genetic testing. Provided by Australia’s Centre for Genetics Education.

Understanding Risk

Understanding Cancer Risk. An article on Cancer.net, an information source provided by the American Society of Clinical Oncology.

Understanding Statistics Used to Estimate Risk and Recommend Screening. An article on Cancer.net, an information source provided by the American Society of Clinical Oncology.

Communicating with Family

Sharing Genetic Test Results with Family. An article on Cancer.net, an information source provided by the American Society of Clinical Oncology

Family Health History Initiative. Resources provided by the U.S. Surgeon General to help patients open up family communication about health history.

General Support

FORCE: Facing Our Risk of Cancer Empowered. A national non-profit organization providing family-friendly education about HBOC, a support community, and links to resources

Bright Pink. A support organization specifically for younger women at high risk for breast and ovarian cancer.

Sharsheret. A non-profit organization supporting women of Jewish ancestry facing breast cancer

NOCC: National Ovarian Cancer Coalition. A non-profit dedicated to raising awareness and education about ovarian cancer.

General Education

Genetics Home Reference. Family-friendly education about the genetic contribution to breast cancer. A resource of the National Library of Medicine.

National Comprehensive Cancer Network Patient Resources. Provides family-friendly educational resources, including translations of guidelines that doctors use to prevent, screen and treat cancer.

 

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