Patient and Family Resources

Resources for the Genetic Evaluation Process

Genetic Counseling

What to Expect When Meeting With a Genetic Counselor: An article on Cancer.net, an information source provided by the American Society of Clinical Oncology. http://www.cancer.net/all-about-cancer/genetics/what-expect-when-meeting-genetic-counselor

 Testing Decision-making

Genetic Testing: An article listing factors to consider when making a decision about genetic testing. Provided by the American Society of Clinical Oncology. http://www.cancer.net/all-about-cancer/genetics/genetic-testing

Testing Decision Aid: A tool to help patients weigh the pros and cons of genetic testing. Provided by Australia’s Centre for Genetics Education. http://www.genetics.edu.au/Publications-and-Resources/PublicationsBrochuresandPamphlets/Understanding%20genetic%20tests%20for%20Breast%20and%20Ovarian%20Cancer%20that%20runs%20in%20the%20family-Information%20and%20Decision%20Aid.pdf

 Understanding risk

Understanding Cancer Risk: An article on Cancer.net, an information source provided by the American Society of Clinical Oncology. http://www.cancer.net/all-about-cancer/risk-factors-and-prevention/understanding-cancer-risk

Understanding Statistics Used to Estimate Risk and Recommend Screening: An article on Cancer.net, an information source provided by the American Society of Clinical Oncology. http://www.cancer.net/all-about-cancer/newly-diagnosed/understanding-statistics-used-estimate-risk-and-recommend-screening

 Communicating with Family

Sharing Genetic Test Results with Family: An article on Cancer.net, an information source provided by the American Society of Clinical Oncology. http://www.cancer.net/all-about-cancer/genetics/sharing-genetic-test-results-your-family

 Family Health History Initiative: Resources provided by the U.S. Surgeon General to help patients open up family communication about health history. http://www.hhs.gov/familyhistory/

General Support

FORCE: Facing Our Risk of Cancer Empowered: A national non-profit organization providing family-friendly education about HBOC, a support community, and links to resources. http://www.facingourrisk.org

 Bright Pink: A support organization specifically for younger women at high risk for breast and ovarian cancer. http://www.brightpink.org

 Sharsheret: A non-profit organization supporting women of Jewish ancestry facing breast cancer. http://www.sharsheret.org

 NOCC: National Ovarian Cancer Coalition: A non-profit dedicated to raising awareness and education about ovarian cancer. http://www.ovarian.org

General Education

Genetics Home Reference: Family-friendly education about the genetic contribution to breast cancer. A resource of the National Library of Medicine. http://ghr.nlm.nih.gov/condition/breast-cancer

National Comprehensive Cancer Network Patient Resources: Provides family-friendly educational resources, including translations of guidelines that doctors use to prevent, screen and treat cancer.  http://www.nccn.org/patients

 

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